The Unknown Disease


This video was very hard for me to watch because it mirrors my family's journey quite a bit. My wife Ann also has Neuro-Myelitis Optica (NMO) Syndrome (also called Devics Disease). The onset and progression was different than what Carla experienced in the video but some of the paralytic effects are very similar. I can so relate to this journey of hospital relapses, physical therapy and doctor visits. My prayers go out for Bill and Carla Weller.. asking God to give them miraculous grace.. and to give all of us a cure for NMO.

9 comments:

  1. it takes a lot of courage to live with an illness like that. My prayers are with you

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  2. Carla has a blog where she has chronicled her journey so far - you can find it here.

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  3. Avery heart rending and moving video. Its a disease I never heard of before. My prayers are with you and Ann too.
    Thank you for the awareness.

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  4. this video makes my heart hurt for her.

    but especially for you and ann.

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  5. Thanks all for the kind affirmations. I infrequently post about Ann's health issues here.. we need all the prayer we can get.

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  6. Wow, Bob. I just watched this. Do they know what causes NMO? I am very sorry that Ann, and therefore you, live with this :(

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  7. @Barbara - NMO. like many neurological diseases, is a bit of a mystery.. researchers have not discovered the cause of it and do not have a cure for it. The way that deal with it is through a chemo drug that suppresses the immune system. I am hoping that things like stem cell research will one day bring us a cure.

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  8. Thank you Bob for sharing this video, it made me cry for her and for Ann and your families. Feeling powerless I turn to prayer I pray for the physicians, the researchers, the drug companies that they find what they need to know in order to help restore a normal life for those with this disease. God works in everything and I believe if enough of us pray and never give up hope that he will reward us.
    God bless everyone.
    Terri Chamberlain

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