tag:blogger.com,1999:blog-749955731953911627.post1743593225190902701..comments2023-11-02T04:53:05.386-05:00Comments on kc bob: A Day in the Life with an Autoimmune Diseasekc bobhttp://www.blogger.com/profile/17440862813109808755noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-749955731953911627.post-10854058213947218002016-01-12T07:34:07.187-06:002016-01-12T07:34:07.187-06:00So appreciate your comment Kevin. Ann has a rare a...So appreciate your comment Kevin. Ann has a rare autoimmune disease called Neuro-Myelitis Optica (NMO) Syndrome It is also called Devics Disease. The disease came with horrible paralysis in 2002. The pattern was relapsing/remitting for many years and the docs misdiagnosed her with MS. After several horrible disabling relapses in 2007 Ann was rediagnosed in 2008 with NMO. Ann has been in a wheelchair since 2007. You can learn more about here journey since then at http://www.kcbob.com/2008/02/what-about-ann.html - read from the bottom up. ツ<br /><br />These days we live in a loft by the river in downtown Kansas City. The location affords Ann much flexibility as she is able to drive her wheelchair to the grocery store, theater, library, framer's market and many restaurants close by. kc bobhttps://www.blogger.com/profile/17440862813109808755noreply@blogger.comtag:blogger.com,1999:blog-749955731953911627.post-21947992587367410192016-01-11T06:22:43.257-06:002016-01-11T06:22:43.257-06:00I just came across your blog and your post about m...I just came across your blog and your post about me, this morning.....<br />I was searching the web as I do every morning, for new info about TM and I found this....<br />THANK YOU for posting this....!!!<br />It is sincerely appreciated.<br />I wonder, you mention your wife Ann.....<br />Is she someone I might know and possibly be part of my TM support group on Facebook....<br />Transverse Myelitis Folks..??<br />Thanks again and I wish you both the best.<br />KevinKevinDWhttps://www.blogger.com/profile/16993988328501011721noreply@blogger.comtag:blogger.com,1999:blog-749955731953911627.post-70242673400598440132012-04-18T15:50:28.254-05:002012-04-18T15:50:28.254-05:00So true Ma! I know for us, the simple inability to...So true Ma! I know for us, the simple inability to negotiate stairs or a bathroom really changes the way one views the world. Thank God the the Americans with Disabilities Act.kc bobhttps://www.blogger.com/profile/17440862813109808755noreply@blogger.comtag:blogger.com,1999:blog-749955731953911627.post-7274871940433729782012-04-18T15:45:34.008-05:002012-04-18T15:45:34.008-05:00My mom has just been through a series of health is...My mom has just been through a series of health issues that won't be going away. It really changes one's outlook.Alicehttps://www.blogger.com/profile/00380432930727921469noreply@blogger.comtag:blogger.com,1999:blog-749955731953911627.post-22896365854705711542012-04-18T08:58:29.883-05:002012-04-18T08:58:29.883-05:00I agree Sue. Thanksgiving is essential.I agree Sue. Thanksgiving is essential.kc bobhttps://www.blogger.com/profile/17440862813109808755noreply@blogger.comtag:blogger.com,1999:blog-749955731953911627.post-91899007630045432782012-04-17T21:39:29.113-05:002012-04-17T21:39:29.113-05:00Being thankful everyday for what we have.
Great ad...Being thankful everyday for what we have.<br />Great advice whether we have a disability or not.<br />Thanks for sharing this Bob.photowannabehttps://www.blogger.com/profile/11760961275666768173noreply@blogger.com